Researchers from NORDeHEALTH have been part of the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions.
The study aimed to map available evidence on patient accessible electronic health records in mental healthcare. Thirty-one scientific articles from the USA, Sweden, Norway, Netherlands, Canada, the UK, and Australia were included in the review, with most surveys and qualitative methods. The study results show a predominance of positive experiences among service users, such as increased feelings of validation and a sense of control, while healthcare professionals frequently express a perceived burden and apprehension. The results align with prior studies on patient-accessible EHRs and clinical notes in general medical settings. This study also reports the experiences of care partners, such as family members and friends, and views of policy stakeholders and experts. There is a major research gap on the evidence of sharing EHRs or clinical notes with people affected by mental health conditions and further research is needed.
· Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health. 2021;8(12):e34170. doi: 10.2196/34170. PMID: 34904956.
NORDeHEALTH 
As a person with many severe mental health conditions/problems and long history in the care. I can say when i first found out about 1177 and read my journal…. wit cPTSD you can just imagine the shock of information’s streaming in of things you’ve forgotten and pain from past experiences. Few hours of intense reading and i was already on the way to the hospital for suicide attempt. Certain Patients SHOULD NOT be able to read journal unless a professional is with the person and/or the person has become stable enough. I cant stress how important that really is
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