Researchers from NORDeHEALTH have conducted a scoping review study collating existing research on views, use, and experiences of web-based access to EHRs for children, adolescents, and parents.
Seventy-four scientific articles from the United States, Australia, Canada, United Kingdom, and New Zealand, were included in the study. Most papers were viewpoints and quantitative studies. Perspectives comprised children and adolescents, parents, healthcare professionals, and other groups.
The results indicate that concerns of children’s, adolescents’, parents’ and healthcare professionals’ online record access commonly differ from lived experiences. The researchers found that patients and their parents often expressed positive experiences of web-based access to electronic health records while healthcare professionals held more concerns. Still, more research is warranted on adolescents’ experiences of access to their EHRs. The main concern among healthcare professionals was maintaining information privacy and confidentiality for adolescents in regards to parental access, and many suggestions were made to mitigate such issues, such as education for all stakeholders and improved portal functionality.
- Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review. J Med Internet Res 2022;24(11):e40328. Doi: 10.2196/40328. PMID: 36413382.