BMJ webinar on ethical aspects

Charlotte Blease and Hanife Rexhepi who both actively participate in the NORDeHEALTH project, spoke at the first of four webinars organized by the BMJ on patient access to health records. The webinar had a focus on ethical aspects, and discussed how NOT giving patients access to their records pose ethical problems of their own. YouContinue reading “BMJ webinar on ethical aspects”

BMJ webinar series

Tonight at 6 pm (Swedish time), Maria Hägglund (PI for NORDeHEALTH) will the speaking in the fourth and last of a series of webinars organized by the BMJ on patients access to their health records. She will be giving an international overview and discuss some of the implementation challenges we have identified in research studiesContinue reading “BMJ webinar series”

Plenary Session at the European Patient Forum Congress

Maria Hägglund, PI for NORDeHEALTH, will deliver a Keynote speech as part of a Plenary Session at the EPF Congress on October 26th 13.00-14.00 CET. Patients’ access, control and ownership of health data remains key topics to address to harness health data for better patients’ care. This plenary session will focus on discussing these threeContinue reading “Plenary Session at the European Patient Forum Congress”

Usability of the Swedish Patient Portal

In July, Swedish partners from the NORDeHEALTH project published findings from a survey done 2016 which included questions on the usability of the national patient portal. Hägglund M, Scandurra IUser Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale JMIR Hum Factors 2021;8(3):e24927doi: 10.2196/24927PMID: 34313596 The data was collected through an online survey which wasContinue reading “Usability of the Swedish Patient Portal”

Benefits of sharing notes in a pandemic

From April 5, 2021, as part of the 21st Century Cures Act, all providers in the United States must offer patients access to the medical information housed in their electronic records. Via secure health portals, patients can log in to access lab and test results, lists of prescribed medications, referral appointments, and the narrative reportsContinue reading “Benefits of sharing notes in a pandemic”

BMJ Opinion piece on the NORDeHEALTH project

We have published an opinion piece on the NORDeHEALTH project in the BMJ. The opinion piece describes the project and four important areas that will receive special focus;  Contextual differences: when reading studies on success or failure of PAEHR implementations there is often a lack of detail provided on contextual or socio-technical factors that could have influenced the results.  UsabilityContinue reading “BMJ Opinion piece on the NORDeHEALTH project”

NORDeHEALTH at Vitalis!

Tomorrow, the largest Nordic eHealth conference Vitalis begins! NORDeHEALTH will have a 2 hour session in the conference full of interesting presentations. Please find the program for our session here. We will have interesting presentations from Sweden, Norway, Finland, Estonia and the US, all focusing on patients online access to their electronic health records.

Patients, clinicians and open notes: information blocking as a case of epistemic injustice

A new article from the NORDeHEALTH project was just published in the Journal of Medical Ethics. The authors build on previous research on patients access to their health records, and argue that denying patients access can be seen as a case of epistemic injustice. Even in countries that have implemented the practice of giving patientsContinue reading “Patients, clinicians and open notes: information blocking as a case of epistemic injustice”

Preparing Patients and Clinicians for Open Notes in Mental Health

Researchers from the NORDeHEALTH project just published an article exploring international experts opinions on preparing patients and clinicians for patients’ online access to the notes in their record in a mental health context. Although the study is not part of the actual NORDeHEALTH results, it is highly relevant to the project! A total of 70Continue reading “Preparing Patients and Clinicians for Open Notes in Mental Health”