Funding to study documentation errors and patients online record access
The NORDeHEALTH project leader Maria Hägglund, has been granted funding from the Swedish Research Council (VR) for a 3-year project aiming to explore how we can use patients’ online record access to find and address documentation errors that could lead to patient safety issues and harm. Participating researchers are Anna Kharko, Charlotte Blease, and Sara…
Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review
Researchers from NORDeHEALTH have conducted a scoping review study collating existing research on views, use, and experiences of web-based access to EHRs for children, adolescents, and parents. Seventy-four scientific articles from the United States, Australia, Canada, United Kingdom, and New Zealand, were included in the study. Most papers were viewpoints and quantitative studies. Perspectives comprised…
Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries
Annika Bärkås, PhD student at Uppsala university and participant in the NORDeHEALTH project, will present one of her studies in a webinar on Thursday 8th of December 12.15-13.00 (CET). The webinar is organized by the Swedish Medical Informatics Association (SFMI). The study presents a comparison of national differences between Sweden, Norway, Finland and Estonia with respect…
Patient empowerment through online access to health records
Rapid, convenient, and full access to personal electronic health records is a key part of empowering patients to manage their health and collaborate with healthcare, argue Maria Hägglund and colleagues in a new publication in the BMJ. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records BMJ 2022; 378 :e071531 doi:10.1136/bmj-2022-071531
2-day conference in Uppsala!
Don’t miss our upcoming conference in Uppsala on patients’ online access to their electronic health records! Registration is open now, limited number of seats. We have an exciting program with international guests. Read more and register here: https://journalen10.se.
Usability of the Swedish PAEHR 2016
We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study JMIR Hum Factors 2022;9(2):e37192 A survey study was conducted to elicit opinions and experiences of…
Report from MIE2022
On May 26th this year, I (Josefin Hagström) travelled to Nice on the French Riviera with my supervisor Maria Hägglund and three other doctoral students (Annika Bärkås, Irene Muli, and Lovisa Hagstedt Jäderlund), to attend the 32nd Medical Informatics Europe Conference (MIE2022). The conference was arranged by the European Federation for Medical Informatics (EFMI). At…
Webbinar recording “Patients access to their EHR” 2022-03-17
Maria Hägglund presented at a webbinar at Linnaeus University with the title: “Patients access to their electronic health records – experiences from Sweden and an international outlook”. The webinar was recorded, and you can now find the recording here.
Webbinar 29 March
Maria Hägglund, the project leader for NORDeHEALTH, has been invited to give a presentation in the U-care seminar series. Maria will give a short international outlook, and briefly share preliminary results from the international NORDeHEALTH survey to patients, accessible through the national patient portals in Sweden (1177.se and ‘Journalen’), Finland, Norway and Estonia. Focus will…
Webbinar at Linnaeus University
Thursday March 17, 15.00-16.00 Swedish time, Maria Hägglund (PI for NORDeHEALTH) will give a talk at Linnaeus University on “Patients access to their electronic health records – experiences from Sweden and an international outlook”. To sign up, please register here!
NORDeHEALTH national surveys
As of today, Monday 24th of January 2022, the NORDeHEALTH national surveys are published in Sweden, Norway, Estonia and Finland. Anyone can answer by logging in to the respective national patient portal. We hope to be able to both learn more about how patients use the access to their electronic health records, and what they…
Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review
Researchers from NORDeHEALTH have been part of the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions. The study aimed to map available evidence on patient accessible electronic health records in mental healthcare. Thirty-one scientific articles from the USA, Sweden, Norway, Netherlands, Canada,…
BMJ webinar on ethical aspects
Charlotte Blease and Hanife Rexhepi who both actively participate in the NORDeHEALTH project, spoke at the first of four webinars organized by the BMJ on patient access to health records. The webinar had a focus on ethical aspects, and discussed how NOT giving patients access to their records pose ethical problems of their own. You…
BMJ webinar series
Tonight at 6 pm (Swedish time), Maria Hägglund (PI for NORDeHEALTH) will the speaking in the fourth and last of a series of webinars organized by the BMJ on patients access to their health records. She will be giving an international overview and discuss some of the implementation challenges we have identified in research studies…
NORDeHEALTH on EHiN!
EHiN – E-health in Norway – the largest e-health conference in Norway is held on November 9th and 10th this year. It brings together the health sector, business and decision-makers to promote tomorrow’s e-health development. About 1000 participants will attend physically along with another 1000 digitally. On the second day there will be a one-hour…
Plenary Session at the European Patient Forum Congress
Maria Hägglund, PI for NORDeHEALTH, will deliver a Keynote speech as part of a Plenary Session at the EPF Congress on October 26th 13.00-14.00 CET. Patients’ access, control and ownership of health data remains key topics to address to harness health data for better patients’ care. This plenary session will focus on discussing these three…
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