Patient empowerment through online access to health records
Rapid, convenient, and full access to personal electronic health records is a key part of empowering patients to manage their health and collaborate with healthcare, argue Maria Hägglund and colleagues in a new publication in the BMJ. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records BMJ 2022; 378 :e071531 doi:10.1136/bmj-2022-071531
2-day conference in Uppsala!
Don’t miss our upcoming conference in Uppsala on patients’ online access to their electronic health records! Registration is open now, limited number of seats. We have an exciting program with international guests. Read more and register here: https://journalen10.se.
Usability of the Swedish PAEHR 2016
We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study JMIR Hum Factors 2022;9(2):e37192 A survey study was conducted to elicit opinions and experiences ofContinue reading “Usability of the Swedish PAEHR 2016”
Report from MIE2022
On May 26th this year, I (Josefin Hagström) travelled to Nice on the French Riviera with my supervisor Maria Hägglund and three other doctoral students (Annika Bärkås, Irene Muli, and Lovisa Hagstedt Jäderlund), to attend the 32nd Medical Informatics Europe Conference (MIE2022). The conference was arranged by the European Federation for Medical Informatics (EFMI). AtContinue reading “Report from MIE2022”
Webbinar recording “Patients access to their EHR” 2022-03-17
Maria Hägglund presented at a webbinar at Linnaeus University with the title: “Patients access to their electronic health records – experiences from Sweden and an international outlook”. The webinar was recorded, and you can now find the recording here.
Webbinar 29 March
Maria Hägglund, the project leader for NORDeHEALTH, has been invited to give a presentation in the U-care seminar series. Maria will give a short international outlook, and briefly share preliminary results from the international NORDeHEALTH survey to patients, accessible through the national patient portals in Sweden (1177.se and ‘Journalen’), Finland, Norway and Estonia. Focus willContinue reading “Webbinar 29 March”
Webbinar at Linnaeus University
Thursday March 17, 15.00-16.00 Swedish time, Maria Hägglund (PI for NORDeHEALTH) will give a talk at Linnaeus University on “Patients access to their electronic health records – experiences from Sweden and an international outlook”. To sign up, please register here!
NORDeHEALTH national surveys
As of today, Monday 24th of January 2022, the NORDeHEALTH national surveys are published in Sweden, Norway, Estonia and Finland. Anyone can answer by logging in to the respective national patient portal. We hope to be able to both learn more about how patients use the access to their electronic health records, and what theyContinue reading “NORDeHEALTH national surveys”
Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review
Researchers from NORDeHEALTH have been part of the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions. The study aimed to map available evidence on patient accessible electronic health records in mental healthcare. Thirty-one scientific articles from the USA, Sweden, Norway, Netherlands, Canada,Continue reading “Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review”
BMJ webinar on ethical aspects
Charlotte Blease and Hanife Rexhepi who both actively participate in the NORDeHEALTH project, spoke at the first of four webinars organized by the BMJ on patient access to health records. The webinar had a focus on ethical aspects, and discussed how NOT giving patients access to their records pose ethical problems of their own. YouContinue reading “BMJ webinar on ethical aspects”
BMJ webinar series
Tonight at 6 pm (Swedish time), Maria Hägglund (PI for NORDeHEALTH) will the speaking in the fourth and last of a series of webinars organized by the BMJ on patients access to their health records. She will be giving an international overview and discuss some of the implementation challenges we have identified in research studiesContinue reading “BMJ webinar series”
NORDeHEALTH on EHiN!
EHiN – E-health in Norway – the largest e-health conference in Norway is held on November 9th and 10th this year. It brings together the health sector, business and decision-makers to promote tomorrow’s e-health development. About 1000 participants will attend physically along with another 1000 digitally. On the second day there will be a one-hourContinue reading “NORDeHEALTH on EHiN!”
Plenary Session at the European Patient Forum Congress
Maria Hägglund, PI for NORDeHEALTH, will deliver a Keynote speech as part of a Plenary Session at the EPF Congress on October 26th 13.00-14.00 CET. Patients’ access, control and ownership of health data remains key topics to address to harness health data for better patients’ care. This plenary session will focus on discussing these threeContinue reading “Plenary Session at the European Patient Forum Congress”
Patients’ Access to Their Psychiatric Notes
Swedish partners recently published an article on the subject of patient’s access to their psychiatric notes. Here is a brief summary. The phenomenon of sharing clinical notes or narrative visit reports with patients is often referred to as ‘open notes.’ Open notes in psychiatric care are considered particularly controversial. The few studies that have investigatedContinue reading “Patients’ Access to Their Psychiatric Notes”
Usability of the Swedish Patient Portal
In July, Swedish partners from the NORDeHEALTH project published findings from a survey done 2016 which included questions on the usability of the national patient portal. Hägglund M, Scandurra IUser Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale JMIR Hum Factors 2021;8(3):e24927doi: 10.2196/24927PMID: 34313596 The data was collected through an online survey which wasContinue reading “Usability of the Swedish Patient Portal”
Benefits of sharing notes in a pandemic
From April 5, 2021, as part of the 21st Century Cures Act, all providers in the United States must offer patients access to the medical information housed in their electronic records. Via secure health portals, patients can log in to access lab and test results, lists of prescribed medications, referral appointments, and the narrative reportsContinue reading “Benefits of sharing notes in a pandemic”
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