Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review
Researchers from NORDeHEALTH have been part of the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions. The study aimed to map available evidence on patient accessible electronic health records in mental healthcare. Thirty-one scientific articles from the USA, Sweden, Norway, Netherlands, Canada,Continue reading “Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review”
BMJ webinar on ethical aspects
Charlotte Blease and Hanife Rexhepi who both actively participate in the NORDeHEALTH project, spoke at the first of four webinars organized by the BMJ on patient access to health records. The webinar had a focus on ethical aspects, and discussed how NOT giving patients access to their records pose ethical problems of their own. YouContinue reading “BMJ webinar on ethical aspects”
BMJ webinar series
Tonight at 6 pm (Swedish time), Maria Hägglund (PI for NORDeHEALTH) will the speaking in the fourth and last of a series of webinars organized by the BMJ on patients access to their health records. She will be giving an international overview and discuss some of the implementation challenges we have identified in research studiesContinue reading “BMJ webinar series”
NORDeHEALTH on EHiN!
EHiN – E-health in Norway – the largest e-health conference in Norway is held on November 9th and 10th this year. It brings together the health sector, business and decision-makers to promote tomorrow’s e-health development. About 1000 participants will attend physically along with another 1000 digitally. On the second day there will be a one-hourContinue reading “NORDeHEALTH on EHiN!”
Plenary Session at the European Patient Forum Congress
Maria Hägglund, PI for NORDeHEALTH, will deliver a Keynote speech as part of a Plenary Session at the EPF Congress on October 26th 13.00-14.00 CET. Patients’ access, control and ownership of health data remains key topics to address to harness health data for better patients’ care. This plenary session will focus on discussing these threeContinue reading “Plenary Session at the European Patient Forum Congress”
Patients’ Access to Their Psychiatric Notes
Swedish partners recently published an article on the subject of patient’s access to their psychiatric notes. Here is a brief summary. The phenomenon of sharing clinical notes or narrative visit reports with patients is often referred to as ‘open notes.’ Open notes in psychiatric care are considered particularly controversial. The few studies that have investigatedContinue reading “Patients’ Access to Their Psychiatric Notes”
Usability of the Swedish Patient Portal
In July, Swedish partners from the NORDeHEALTH project published findings from a survey done 2016 which included questions on the usability of the national patient portal. Hägglund M, Scandurra IUser Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale JMIR Hum Factors 2021;8(3):e24927doi: 10.2196/24927PMID: 34313596 The data was collected through an online survey which wasContinue reading “Usability of the Swedish Patient Portal”
Benefits of sharing notes in a pandemic
From April 5, 2021, as part of the 21st Century Cures Act, all providers in the United States must offer patients access to the medical information housed in their electronic records. Via secure health portals, patients can log in to access lab and test results, lists of prescribed medications, referral appointments, and the narrative reportsContinue reading “Benefits of sharing notes in a pandemic”
Starting off with a focus on national socio-technical contexts and policies
I will in this short text introduce the project’s second work package “WP 2 – National socio-technical contexts and policies”, which I am co-leading together with Isabella Scandurra. Aside from us, Gunnar Klein and Annika Bärkås are also highly involved in the work package, which was one of the work packages where work started offContinue reading “Starting off with a focus on national socio-technical contexts and policies”
BMJ Opinion piece on the NORDeHEALTH project
We have published an opinion piece on the NORDeHEALTH project in the BMJ. The opinion piece describes the project and four important areas that will receive special focus; Contextual differences: when reading studies on success or failure of PAEHR implementations there is often a lack of detail provided on contextual or socio-technical factors that could have influenced the results. UsabilityContinue reading “BMJ Opinion piece on the NORDeHEALTH project”
NORDeHEALTH at Vitalis!
Tomorrow, the largest Nordic eHealth conference Vitalis begins! NORDeHEALTH will have a 2 hour session in the conference full of interesting presentations. Please find the program for our session here. We will have interesting presentations from Sweden, Norway, Finland, Estonia and the US, all focusing on patients online access to their electronic health records.
Patients, clinicians and open notes: information blocking as a case of epistemic injustice
A new article from the NORDeHEALTH project was just published in the Journal of Medical Ethics. The authors build on previous research on patients access to their health records, and argue that denying patients access can be seen as a case of epistemic injustice. Even in countries that have implemented the practice of giving patientsContinue reading “Patients, clinicians and open notes: information blocking as a case of epistemic injustice”
Preparing Patients and Clinicians for Open Notes in Mental Health
Researchers from the NORDeHEALTH project just published an article exploring international experts opinions on preparing patients and clinicians for patients’ online access to the notes in their record in a mental health context. Although the study is not part of the actual NORDeHEALTH results, it is highly relevant to the project! A total of 70Continue reading “Preparing Patients and Clinicians for Open Notes in Mental Health”
NORDeHEALTH graphically recorded
Yesterday NordForsk organized a kick-off meeting for the 6 projects that were funded in the same call as NORDeHEALTH. As we presented our projects, the very talented Raquel Benmergui captured our projects graphically. It was fascinating to watch this live during our discussions – and here’s the graphic recording of NORDeHEALTH!
Editorial in the BMJ
Members of the NORDeHEALTH team just published an editorial in the BMJ, discussing a new US regulation. On 5 April a new federal rule will require US healthcare providers to give patients access to all the health information in their electronic medical records without charge. This new information sharing rule from the 21st Century Cures ActContinue reading “Editorial in the BMJ”
NORDeHEALTH kicking it off!
We are very excited to finally be able to start working on this Nordic collaboration to evaluate and improve implementation of personal eHealth services in the Nordic countries, and beyond. We have partners in 5 countries; Sweden, Norway, Finland, Estonia, and USA. When we wrote the funding application, we had no idea that a pandemicContinue reading “NORDeHEALTH kicking it off!”
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