Patient empowerment through online access to health records

Rapid, convenient, and full access to personal electronic health records is a key part of empowering patients to manage their health and collaborate with healthcare, argue Maria Hägglund and colleagues in a new publication in the BMJ. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records BMJ 2022; 378 :e071531 doi:10.1136/bmj-2022-071531

Usability of the Swedish PAEHR 2016

We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study JMIR Hum Factors 2022;9(2):e37192 A survey study was conducted to elicit opinions and experiences ofContinue reading “Usability of the Swedish PAEHR 2016”

Report from MIE2022

On May 26th this year, I (Josefin Hagström) travelled to Nice on the French Riviera with my supervisor Maria Hägglund and three other doctoral students (Annika Bärkås, Irene Muli, and Lovisa Hagstedt Jäderlund), to attend the 32nd Medical Informatics Europe Conference (MIE2022). The conference was arranged by the European Federation for Medical Informatics (EFMI). AtContinue reading “Report from MIE2022”

Webbinar 29 March

Maria Hägglund, the project leader for NORDeHEALTH, has been invited to give a presentation in the U-care seminar series. Maria will give a short international outlook, and briefly share preliminary results from the international NORDeHEALTH survey to patients, accessible through the national patient portals in Sweden (1177.se and ‘Journalen’), Finland, Norway and Estonia. Focus willContinue reading “Webbinar 29 March”

NORDeHEALTH national surveys

As of today, Monday 24th of January 2022, the NORDeHEALTH national surveys are published in Sweden, Norway, Estonia and Finland. Anyone can answer by logging in to the respective national patient portal. We hope to be able to both learn more about how patients use the access to their electronic health records, and what theyContinue reading “NORDeHEALTH national surveys”

Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review

Researchers from NORDeHEALTH have been part of the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions. The study aimed to map available evidence on patient accessible electronic health records in mental healthcare. Thirty-one scientific articles from the USA, Sweden, Norway, Netherlands, Canada,Continue reading “Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review”

BMJ webinar on ethical aspects

Charlotte Blease and Hanife Rexhepi who both actively participate in the NORDeHEALTH project, spoke at the first of four webinars organized by the BMJ on patient access to health records. The webinar had a focus on ethical aspects, and discussed how NOT giving patients access to their records pose ethical problems of their own. YouContinue reading “BMJ webinar on ethical aspects”