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The project brings together experiences and knowledge from studying PeHS and patients access to their medical records in the Nordic countries, with partners from Sweden, Norway, Finland, and Estonia, as well as in the US (through partnership with the OpenNotes research group). This joint effort will increase the empirical evidence and establish a theoretical framework to explain howimplementation of PeHS impact different patient groups and healthcare, and how we can best evaluate and compare results across contexts. This is essential in order to use our resources wisely and avoid failed implementations, but also to ensure that the benefits of digitalization can reach as many patients, family caregivers and healthcare professionals as possible.
“Personal eHealth, patient empowerment, and self-management topics get a lot of attention. Large sums of money go toward designing, developing and implementing these services globally. However, we still have no clear picture of how factors like infrastructure, reimbursement models, and population characteristics affect the implementation of these services. How should we take these factors into account when designing future digital health programs for our citizens?”Maria Hägglund, PI NORDeHEALTH