Publications

Blease C, Salmi L, Hägglund M, Wachenheim D, DesRoches C
COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust
JMIR Ment Health 2021;8(6):e29314
doi: 10.2196/29314
PMID: 34081603

Blease C, Salmi L, Rexhepi H, Hägglund M, DesRoches C. Patients, clinicians and open notes: information blocking as a case of epistemic injustice Journal of Medical Ethics Published Online First: 14 May 2021. doi: 10.1136/medethics-2021-107275

Blease C, Torous J, Kharko A, DesRoches CM, Harcourt K, O’Neill S, Salmi L, Wachenheim D, Hägglund M (2021). Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts. JMIR mental health, 8(4)

Blease C, O’Neill SF, Torous J, DesRoches CM, Hägglund M. Patient Access to Mental Health Notes – Motivating Evidence-Informed Ethical Guidelines, The Journal of Nervous and Mental Disease: April 2021 – Volume 209 – Issue 4 – p 265-269

Blease C, Dong Z, Torous J, Walker J, Hägglund M, DesRoches CM. Association of Patients Reading Clinical Notes With Perception of Medication Adherence Among Persons With Serious Mental Illness. JAMA Netw Open. 2021;4(3):e212823.

Salmi L, Blease C, Hägglund M, Walker J, DesRoches C. (2021). US policy requires immediate release of records to patients. BMJ. British Medical Journal, 372

Blease C, DesRoches C, Hägglund M, Hayden A, Rexhepi H, Salmi​ L. (2021). Knowledge, power, and patients: The ethics of open notes. https://blogs.bmj.com/medical-ethics/2021/05/13/knowledge-power-and-patients-the-ethics-of-open-notes/

Fagerlund AJ, Kristiansen E, Johansen MA, Haumann K, Zanaboni P. (2021). Patient-accessible electronic medical records in mental health care: Health professionals’ experiences after implementation. https://psykologtidsskriftet.no/2021/04/elektronisk-innsyn-i-journal-pasienter-i-psykisk-helsevern-helsepersonells-erfaringer

Hägglund M, Blease C, Scandurra I. (2020). Mobile Access and Adoption of the Swedish National Patient Portal. Studies in Health Technology and Informatics, 275: 82-86

Bjerkan J, Kane B, Uhrenfeldt L, Veie M, Fossum M. (2020). Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review. JMIR research protocols9(8), p.e16781.

Zanaboni P, Kummervold PE, Sørensen T, Johansen MA. (2020). Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey. https://www.jmir.org/2020/2/e16144/

Eriksson N, Södersröm E, Åhlfeldt RM.  (2020) Patient Empowerment and its Connection to Trust. In: The Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 – 18 October 2020: Using digital information for better patient health, care and well-being: Proceedings / [ed] Peter Bath, Päivi Jokela, Laura Sbaffi, Linnaeus University , 2020, s. 63-73 

Nurgalieva L, Cajander Å, Moll J, Åhlfeldt RM, Huvila I, Marchese M. (2020). ‘I do not share it with others. No, it’s for me, it’s my care’: On sharing of patient accessible electronic health records. Health Informatics Journal. https://journals.sagepub.com/doi/10.1177/1460458220912559

Rexhepi H, Huvila I, Åhlfeldt RM, Cajander Å. (2020). Cancer patients’ information seeking behavior related to online electronic healthcare records. Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 – 18 October 2020. Using digital information for better patient health, care and well-being: Proceedings / [ed] Peter Bath, Päivi Jokela, Laura Sbaffi, Linnaeus University,2020.

Rexhepi H, Moll J, Huvila I, Åhlfeldt RM. (2020). Do you want to receive bad news through your patient accessible electronic healthcare record?: A national survey on receiving bad news in the are of digital health. Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 – 18 October 2020. Using digital information for better patient health, care and well-being: Proceedings / [ed] Peter Bath, Päivi Jokela, Laura Sbaffi, Linnaeus University , 2020

Iwaya LH, Li J, Fischer-Hübner S, Åhlfeldt RM, Martucci LA. (2019). E-consent for Data Privacy: Consent Management for Mobile Health Technologies in Public Health Surveys and Disease Surveillance. In Proceedings of the 17th World Congress of Medical and Health Informatics (MEDINFO2019), 26-30 Aug 2019, Lyon, France. pp 1224-1227, Vol 264, 24-26 April 2019, IOS Press

Kristiansen E, Johansen MA, Zanaboni P. (2019). Healthcare personnels’ experience with patients’ online access to electronic health records: Differences between professions, regions, and somatic and psychiatric healthcare. https://app.cristin.no/results/show.jsf?id=1750195

Johansen MA, Kummervold PE, Sorensen T, Zanaboni P. (2019). Health Professionals’ Experience with Patients Accessing Their Electronic Health Records: Results from an Online Survey. https://app.cristin.no/results/show.jsf?id=1723305

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