Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review. J Med Internet Res 2022;24(11):e40328. doi: 10.2196/40328.
Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records BMJ 2022; 378 :e071531 doi:10.1136/bmj-2022-071531
Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study, JMIR Hum Factors 2022;9(2):e37192
Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review. JMIR Res Protoc, 2022 June 15.
Kujala S, Hörhammer I, Väyrynen A, Holmroos M, Nättiaho-Rönnholm M, Hägglund M, Johansen MA. Patients’ Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey. J Med Internet Res, 2022 June 6.
Hagström J, Scandurra I, Moll J, Blease C, Haage B, Hörhammer I, Hägglund M. Minor and Parental Access to Electronic Health Records: Differences Across Four Countries. Stud Health Technol Inform, 2022 May 25.
Bärkås A, Hägglund M, Moll J, Cajander Å, Rexhepi H, Hörhammer I, Blease C, Scandurra I. Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries. Stud Health Technol Inform, 2022 May 25.
Fagerlund AJ, Kristiansen E, Simonsen RA. Experiences from using patient accessible electronic health records – a qualitative study within Sámi mental health patients in Norway. 2022 Jan 17. https://www.tandfonline.com/doi/full/10.1080/22423982.2022.2025682
Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review. 2021 Dec 14. https://mental.jmir.org/2021/12/e34170
Blease C, DesRoches C. Open notes in patient care: Confining deceptive placebos to the past? 2021 Oct 19. https://jme.bmj.com/content/medethics/early/2021/10/26/medethics-2021-107746.full.pdf?ijkey=iFxGBhr71vtx64R&keytype=ref
Blease C, Kharko A, Hägglund M, O’Neill S, Wachenheim D, Salmi L, Harcourt K, Locher C, DesRoches C, Torous J. The benefits and harms of open notes in mental health: A Delphi survey of international experts. 2021 Oct 13. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0258056
Landgren S, Cajander Å. Non-use of Digital Health Consultations Among Swedish Elderly Living in the Countryside 2021 Sep 10.
Bärkås A, Scandurra I, Rexhepi H, Blease C, Cajander Å, Hägglund M. Patients’ Access to Their Psychiatric Notes: Current Policies and Practices in Sweden. Int J Environ Res Public Health. 2021 Aug 30; 18(17):9140. https://doi.org/10.3390/ijerph18179140
Blease C, Salmi L, Hägglund M, Wachenheim D, DesRoches C
COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust
JMIR Ment Health 2021;8(6):e29314
doi: 10.2196/29314
PMID: 34081603
Blease C, Salmi L, Rexhepi H, Hägglund M, DesRoches C. Patients, clinicians and open notes: information blocking as a case of epistemic injustice Journal of Medical Ethics Published Online First: 14 May 2021. doi: 10.1136/medethics-2021-107275
Blease C, Torous J, Kharko A, DesRoches CM, Harcourt K, O’Neill S, Salmi L, Wachenheim D, Hägglund M (2021). Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts. JMIR mental health, 8(4)
Blease C, O’Neill SF, Torous J, DesRoches CM, Hägglund M. Patient Access to Mental Health Notes – Motivating Evidence-Informed Ethical Guidelines, The Journal of Nervous and Mental Disease: April 2021 – Volume 209 – Issue 4 – p 265-269
Blease C, Dong Z, Torous J, Walker J, Hägglund M, DesRoches CM. Association of Patients Reading Clinical Notes With Perception of Medication Adherence Among Persons With Serious Mental Illness. JAMA Netw Open. 2021;4(3):e212823.
Salmi L, Blease C, Hägglund M, Walker J, DesRoches C. (2021). US policy requires immediate release of records to patients. BMJ. British Medical Journal, 372
Blease C, DesRoches C, Hägglund M, Hayden A, Rexhepi H, Salmi L. (2021). Knowledge, power, and patients: The ethics of open notes. https://blogs.bmj.com/medical-ethics/2021/05/13/knowledge-power-and-patients-the-ethics-of-open-notes/
Fagerlund AJ, Kristiansen E, Johansen MA, Haumann K, Zanaboni P. (2021). Patient-accessible electronic medical records in mental health care: Health professionals’ experiences after implementation. https://psykologtidsskriftet.no/2021/04/elektronisk-innsyn-i-journal-pasienter-i-psykisk-helsevern-helsepersonells-erfaringer
Hägglund M, Blease C, Scandurra I. (2020). Mobile Access and Adoption of the Swedish National Patient Portal. Studies in Health Technology and Informatics, 275: 82-86
Bjerkan J, Kane B, Uhrenfeldt L, Veie M, Fossum M. (2020). Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review. JMIR research protocols, 9(8), p.e16781.
Zanaboni P, Kummervold PE, Sørensen T, Johansen MA. (2020). Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey. https://www.jmir.org/2020/2/e16144/
Eriksson N, Södersröm E, Åhlfeldt RM. (2020) Patient Empowerment and its Connection to Trust. In: The Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 – 18 October 2020: Using digital information for better patient health, care and well-being: Proceedings / [ed] Peter Bath, Päivi Jokela, Laura Sbaffi, Linnaeus University , 2020, s. 63-73
Nurgalieva L, Cajander Å, Moll J, Åhlfeldt RM, Huvila I, Marchese M. (2020). ‘I do not share it with others. No, it’s for me, it’s my care’: On sharing of patient accessible electronic health records. Health Informatics Journal. https://journals.sagepub.com/doi/10.1177/1460458220912559
Rexhepi H, Huvila I, Åhlfeldt RM, Cajander Å. (2020). Cancer patients’ information seeking behavior related to online electronic healthcare records. Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 – 18 October 2020. Using digital information for better patient health, care and well-being: Proceedings / [ed] Peter Bath, Päivi Jokela, Laura Sbaffi, Linnaeus University,2020.
Rexhepi H, Moll J, Huvila I, Åhlfeldt RM. (2020). Do you want to receive bad news through your patient accessible electronic healthcare record?: A national survey on receiving bad news in the are of digital health. Proceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 – 18 October 2020. Using digital information for better patient health, care and well-being: Proceedings / [ed] Peter Bath, Päivi Jokela, Laura Sbaffi, Linnaeus University , 2020
Iwaya LH, Li J, Fischer-Hübner S, Åhlfeldt RM, Martucci LA. (2019). E-consent for Data Privacy: Consent Management for Mobile Health Technologies in Public Health Surveys and Disease Surveillance. In Proceedings of the 17th World Congress of Medical and Health Informatics (MEDINFO2019), 26-30 Aug 2019, Lyon, France. pp 1224-1227, Vol 264, 24-26 April 2019, IOS Press
Kristiansen E, Johansen MA, Zanaboni P. (2019). Healthcare personnels’ experience with patients’ online access to electronic health records: Differences between professions, regions, and somatic and psychiatric healthcare. https://app.cristin.no/results/show.jsf?id=1750195
Johansen MA, Kummervold PE, Sorensen T, Zanaboni P. (2019). Health Professionals’ Experience with Patients Accessing Their Electronic Health Records: Results from an Online Survey. https://app.cristin.no/results/show.jsf?id=1723305
NORDeHEALTH 