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NORDeHEALTH Project News

Plenary Session at the European Patient Forum Congress

Maria Hägglund, PI for NORDeHEALTH, will deliver a Keynote speech as part of a Plenary Session at the EPF Congress on October 26th 13.00-14.00 CET. Patients’ access, control and ownership of health data remains key topics to address to harness health data for better patients’ care. This plenary session will focus on discussing these threeContinue reading “Plenary Session at the European Patient Forum Congress”

Patients’ Access to Their Psychiatric Notes

Swedish partners recently published an article on the subject of patient’s access to their psychiatric notes. Here is a brief summary. The phenomenon of sharing clinical notes or narrative visit reports with patients is often referred to as ‘open notes.’ Open notes in psychiatric care are considered particularly controversial. The few studies that have investigatedContinue reading “Patients’ Access to Their Psychiatric Notes”

Usability of the Swedish Patient Portal

In July, Swedish partners from the NORDeHEALTH project published findings from a survey done 2016 which included questions on the usability of the national patient portal. Hägglund M, Scandurra IUser Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale JMIR Hum Factors 2021;8(3):e24927doi: 10.2196/24927PMID: 34313596 The data was collected through an online survey which wasContinue reading “Usability of the Swedish Patient Portal”

NORDeHEALTH

NORDeHEALTH aims to identify the challenges and opportunities in digitalization of health services, especially when national portals are implemented to give patients online access to their Electronic Health Records and other Personal eHealth Services (PeHS) for increasing self-management and transparency in healthcare. The goal is to enable further digitalization of the public health sector by providing concrete guidelines and frameworks for both design, implementation and evaluation of PeHS.

More specifically, NORDeHEALTH aims to

(1) study the current implementation and adoption of PeHS in the Nordic countries to create new knowledge and in-depth understanding of challenges and opportunities,

(2) develop evidence-based evaluation frameworks and guidelines to help researchers and practitioners within and beyond the Nordic countries evaluating PeHS and their acceptability, and support successfull implementation and adoption of PeHS, and

(3) explore factors around co-design of PeHS through innovation projects focusing on patient-generated data and tools for patients co-creation of the medical record, as well as providing best practice guidelines.

The project is funded by NordForsk through the Research and Innovation Programme on Digitalisation of the Public Sector. The overarching aim of the programme is to combine and integrate knowledge-based, digital innovation efforts with research on the related effects and impact on society and end-users. The total budget of the programme is approximately EUR 8 million.

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