NORDeHEALTH aims to identify the challenges and opportunities in digitalization of health services, especially when national portals are implemented to give patients online access to their Electronic Health Records and other Personal eHealth Services (PeHS) for increasing self-management and transparency in healthcare. The goal is to enable further digitalization of the public health sector by providing concrete guidelines and frameworks for both design, implementation and evaluation of PeHS.
More specifically, NORDeHEALTH aims to
(1) study the current implementation and adoption of PeHS in the Nordic countries to create new knowledge and in-depth understanding of challenges and opportunities,
(2) develop evidence-based evaluation frameworks and guidelines to help researchers and practitioners within and beyond the Nordic countries evaluating PeHS and their acceptability, and support successfull implementation and adoption of PeHS, and
(3) explore factors around co-design of PeHS through innovation projects focusing on patient-generated data and tools for patients co-creation of the medical record, as well as providing best practice guidelines.
Tomorrow, the largest Nordic eHealth conference Vitalis begins! NORDeHEALTH will have a 2 hour session in the conference full of interesting presentations. Please find the program for our session here. We will have interesting presentations from Sweden, Norway, Finland, Estonia and the US, all focusing on patients online access to their electronic health records.
A new article from the NORDeHEALTH project was just published in the Journal of Medical Ethics. The authors build on previous research on patients access to their health records, and argue that denying patients access can be seen as a case of epistemic injustice. Even in countries that have implemented the practice of giving patientsContinue reading “Patients, clinicians and open notes: information blocking as a case of epistemic injustice”
Researchers from the NORDeHEALTH project just published an article exploring international experts opinions on preparing patients and clinicians for patients’ online access to the notes in their record in a mental health context. Although the study is not part of the actual NORDeHEALTH results, it is highly relevant to the project! A total of 70Continue reading “Preparing Patients and Clinicians for Open Notes in Mental Health”
The project is funded by NordForsk through the Research and Innovation Programme on Digitalisation of the Public Sector. The overarching aim of the programme is to combine and integrate knowledge-based, digital innovation efforts with research on the related effects and impact on society and end-users. The total budget of the programme is approximately EUR 8 million.
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