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NORDeHEALTH Project News

Patient empowerment through online access to health records

Rapid, convenient, and full access to personal electronic health records is a key part of empowering patients to manage their health and collaborate with healthcare, argue Maria Hägglund and colleagues in a new publication in the BMJ. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records BMJ 2022; 378 :e071531 doi:10.1136/bmj-2022-071531

2-day conference in Uppsala!

Don’t miss our upcoming conference in Uppsala on patients’ online access to their electronic health records! Registration is open now, limited number of seats. We have an exciting program with international guests. Read more and register here: https://journalen10.se.

Usability of the Swedish PAEHR 2016

We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study JMIR Hum Factors 2022;9(2):e37192 A survey study was conducted to elicit opinions and experiences ofContinue reading “Usability of the Swedish PAEHR 2016”

NORDeHEALTH

NORDeHEALTH aims to identify the challenges and opportunities in digitalization of health services, especially when national portals are implemented to give patients online access to their Electronic Health Records and other Personal eHealth Services (PeHS) for increasing self-management and transparency in healthcare. The goal is to enable further digitalization of the public health sector by providing concrete guidelines and frameworks for both design, implementation and evaluation of PeHS.

More specifically, NORDeHEALTH aims to

(1) study the current implementation and adoption of PeHS in the Nordic countries to create new knowledge and in-depth understanding of challenges and opportunities,

(2) develop evidence-based evaluation frameworks and guidelines to help researchers and practitioners within and beyond the Nordic countries evaluating PeHS and their acceptability, and support successfull implementation and adoption of PeHS, and

(3) explore factors around co-design of PeHS through innovation projects focusing on patient-generated data and tools for patients co-creation of the medical record, as well as providing best practice guidelines.

The project is funded by NordForsk through the Research and Innovation Programme on Digitalisation of the Public Sector. The overarching aim of the programme is to combine and integrate knowledge-based, digital innovation efforts with research on the related effects and impact on society and end-users. The total budget of the programme is approximately EUR 8 million.

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