PhD defense: A growing concern
Friday Jan 17th at 13.15 CET, Josefin Hagström will defend her PhD thesis A growing concern: Online access to minors’ health records The studies included in the thesis have been performed as part of the NORDeHEALTH research project. The defense is open to the public and can be attended in person in Uppsala or online.…
Understanding the Diverse Perceptions of eHealth Technologies among Older Adults
In today’s rapidly evolving digital health landscape, electronic health records (EHRs) offer patients better control over their health data. However, how individuals, especially older adults, perceive and utilize these technologies varies greatly. In a recent NORDeHEALTH study published in Digital Health, “Affordance trajectories and the usefulness of online records access among older adults in Sweden”,…
A Socio-technical Cross-Country Analysis
An important part of the NORDeHEALTH research project has been to explore the differences in socio-technical contexts. The recently published article “Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients’ Access to Electronic Health Records in 4 European Countries” explores how patients access their electronic health records (EHRs) in Estonia, Finland, Norway, and Sweden. This…
French Institute Nordic Award to Saija Simola!
Saija Simola, a doctoral researcher from Aalto University in Finland, has been honoured as a Finnish laureate with the French Institute Nordic Award (FINA) 2024 for Digital Health. This award, presented by the French Institutes of Denmark, Estonia, Finland, Norway, and Sweden, supports young researchers’ collaboration between Nordic countries and France. As part of the…
A Nordic Perspective on Patient Online Record Access and the European Health Data Space
During the NORDeHEALTH project, an important policy change has been proposed, discussed and approved by the European Union – the European Health Data Space (EHDS). We have of course followed this development with great curiosity and excitement, as many of the proposed changes are of high relevance to patients online record access (ORA). Therefore we…
The NORDeHEALTH 2022 patient survey
The NORDeHEALTH project officially ended in 2023, and we have had a hectic period (to say the least). But during 2023, we have published several key papers from the project, that we will introduce with a bit more detail here. In 2022, we launched our NORDeHEALTH patient survey in Sweden, Norway, Finland, and Estonia. Over…
Policy brief accepted!
Researchers from NORDeHEALTH wrote a policy brief for Fast Track to Vision 2030, a collection (or something) by NordForsk that will be used to guide the Nordic policymakers. The policy brief, titled “How can patients be in control of their healthcare if they are not in control of their online health information?” draws attention to…
Josefin Hagström awarded the Peter L Reichertz Young Scientist Prize
MTSI are very proud to announce that PhD candidate Josefin Hagström was awarded the Peter L Reichertz Young Scientist Prize at the MIE2023 conference in Gothenburg. Josefin presented her study on Swedish adolescents’ experiences of identifying errors and omissions in their electronic health records. The results are based on the NORDeHEALTH 2022 patient survey. The Peter L.…
Webinar recording “Online access to minors’ records”, 2023-02-08
PhD student Josefin Hagström presented at a webinar for an ENLIGHT lecture series on “Health & Digitalization”, with the title: “Online access to minors’ records: Experiences among adolescents, parents, and healthcare professionals”. The webinar was recorded, and you can now find the recording here.
Funding to study documentation errors and patients online record access
The NORDeHEALTH project leader Maria Hägglund, has been granted funding from the Swedish Research Council (VR) for a 3-year project aiming to explore how we can use patients’ online record access to find and address documentation errors that could lead to patient safety issues and harm. Participating researchers are Anna Kharko, Charlotte Blease, and Sara…
Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review
Researchers from NORDeHEALTH have conducted a scoping review study collating existing research on views, use, and experiences of web-based access to EHRs for children, adolescents, and parents. Seventy-four scientific articles from the United States, Australia, Canada, United Kingdom, and New Zealand, were included in the study. Most papers were viewpoints and quantitative studies. Perspectives comprised…
Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries
Annika Bärkås, PhD student at Uppsala university and participant in the NORDeHEALTH project, will present one of her studies in a webinar on Thursday 8th of December 12.15-13.00 (CET). The webinar is organized by the Swedish Medical Informatics Association (SFMI). The study presents a comparison of national differences between Sweden, Norway, Finland and Estonia with respect…
2-day conference in Uppsala!
Don’t miss our upcoming conference in Uppsala on patients’ online access to their electronic health records! Registration is open now, limited number of seats. We have an exciting program with international guests. Read more and register here: https://journalen10.se.
Anna Kharko wins best research paper at the Medicinteknikdagarna 2022 Conference
Anna Kharko, project coordinator and researcher at NORDeHEALTH, won the prize for the best research paper at the Swedish conference on medical technology, Medicinteknikdagarna. She presented the first results from the Swedish dataset from the NORDeHEALTH 2022 Patient Survey. Comparing respondents who had and didn’t have healthcare education, she analysed average ratings of the most…
Patient empowerment through online access to health records
Rapid, convenient, and full access to personal electronic health records is a key part of empowering patients to manage their health and collaborate with healthcare, argue Maria Hägglund and colleagues in a new publication in the BMJ. Hägglund M, McMillan B, Whittaker R, Blease C. Patient empowerment through online access to health records BMJ 2022; 378 :e071531 doi:10.1136/bmj-2022-071531
Usability of the Swedish PAEHR 2016
We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study JMIR Hum Factors 2022;9(2):e37192 A survey study was conducted to elicit opinions and experiences of…
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